There is a link between Childhood Dementia and Parkinson’s/Alzheimer’s. For these children, they fight not to remember the past, but in having a future.
isabella elaine lazzara (ee-ss-a) was born on January 21, 2023, in Jacksonville Florida. The third of three Lazzara girls, Isa had a perfect bill of health for her first six months. In June, 2023, Isa’s parents noticed that Isa’s physical development was …
are living with childhood dementia right now — around 12,000 of them are children. Every one of those children belongs to a family like Isa’s, carrying a diagnosis most people have never heard of.
is born with a condition that will cause childhood dementia. In the U.S., that’s around 1,200–1,300 babies every year. Understanding Isa’s rare BPAN (WDR45) mutation helps unlock answers for thousands of children with similar neurodegenerative conditions.
Half of children with childhood dementia die before they turn 10, and around 70% will not reach adulthood. Each year, childhood dementia is estimated to cause about as many deaths in the U.S. as childhood cancer — yet it remains far less recognised.
Families, clinicians and researchers around the world are joining together around Isa’s story and others like hers, working urgently to change the future of childhood dementia.
Our single, urgent goal: Eliminate Childhood Dementia in our lifetime.
over
$ 500,000
funded in research programs to date
Face a truth of children who,
have to look to me and you.
for the answers for the prayers,
knowing life is not just theirs.
but yours and ours to make it right,
don’t give them up without a fight.
trust in their eyes this is for sure,
we must realize there is a cure.
Email: [email protected]
Phone: (904) 822-5089
Address: 5000 Sawgrass Village Circle, Suite 25, Ponte Vedra Beach, FL 32082
